Taking things for granted!

Taking things for granted!

Just because a disability isn’t visible, does not mean it doesn’t exist!

Xavier has Autism. The amount of people over the years that have said to me “he doesn’t look like he’s got anything wrong with him”…!!! ARGH!

So when we used to go into a supermarket and he would have a full on melt down because he couldn’t cope with noise/smell/lighting or whatever, I would get the most horrendous looks from fellow shoppers and people tutting at me and judging that my parenting skills were non existent and that my child was a brat.

When the neighbours or even half the town, could hear murderous screams from the bathroom because Xavier was having a hair wash. He hated the sensation of water on his head.

When Xavier was a baby and had such bad constipation he would cry and cry and cry. Rather than come and ask us if everything was ok we even got reported to social services on a couple of occasions!! Yes…. really!!!

When Xavier freaks out in public toilets when someone dries their hands with the hand dryers.

When Xavier can’t be on the same side of the road as a dog being walked by its owner and i have to grab his hand to make sure we cross over to the other side safely because he is petrified and has no road safety awareness and would just bolt across the road.

I could go on and on.

People are so very quick to judge.

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People also take lots of things for granted. I myself am actually guilty of that one sometimes now that a few of these issues have improved.

Xavier is now quite water confident thanks to swimming lessons with his wonderful school. He loves his baths now but we could do with a wet room or similar style of bathroom as he splashes about so much that more water ends up on the floor than in the bath!! This would be wonderful!!

I have to be quick but i can take him into a supermarket now if we are just popping in. I always hear kids screaming and always think of the parents knowing that people will be looking at them and judging.

The constipation issues are thankfully a thing of the past now and i am so so grateful for that. There is nothing worse than seeing your child in so much pain and not being able to take it away.

Ok so the hand dryers and dogs are still an issue but we are working on those.

Parents/Carers of disabled children/adults (no matter how obvious the disability is) have so much to plan and think about in and out of the home. Going away on holidays, or even just a trip to the local shop. Please don’t judge. Just because someone may look “normal” you really have no idea what they have going on.

Life can be tough enough as it is without people who don’t even know you passing judgement!

Xav

Breaking Barriers

Breaking Barriers

There is such a huge stigma…. once people get “old” they become incapable. Obviously with age comes health problems but that doesn’t mean incapable!

My Father in Law is 82!! Only last summer was he stood on top of the shed fixing the roof!! He doesn’t stop. He is literally always on the go! Fixing and mending things, loading up his van with things to take to the tip, servicing his own van…. the list is endless!! We all tell him he should slow down a little but he won’t! Its what makes him happy. He has always been a grafter and doesn’t feel the need to stop now.

My grandad passed away in November last year at the grand age of 94! Up until about 90 he was out and about most week days with his wife visiting friends or going to socialise at club events they belonged to! He also loved his garden and tended to that too!

So just because someone is old in age it doesn’t mean they aren’t  capable of doing the things they love or even to learn new skills!

There is a new campaign that has been set up called Breaking Barriers.

Its is aimed to reduce the stigma and encourage the older generation to not be put off learning new things. There are so many inspirational people in their older years:

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Photo by Fiona Hanson/AP via espn.com

Fauja Sing is the oldest person to complete a full marathon at the amazing age of 100 years!! He completed his 1st Marathon in London at age 89! He said how running helped him through life and allowed him to travel around the world!

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Image source Inspire More

Lillian Weber who is turning 100 in May (next month) has been sewing a new dress every day for children in need for over two years. Not only has she made over 800 dresses but she also personalises each dress to make them extra special. The dresses are sent to young girls in Africa with the help of Little Dresses for Africa. Lillian is an inspiration!! How awesome is that?

Diana-Athill

Image Source: Independant

Diana Athill is an author and publisher who has been recognised for her autobiographical account of old age. At 91 years old she was awarded a Costa Book Award making her the oldest person to win the award. She studied at Oxford University and worked at BBC during the Second World War.

Ernistine

Image Source: Culurism

Ernestine Shepherd who turned 75 in 2010 was the oldest competitive female bodybuilder in the world. She lives by her mantra ‘determined, dedicated and disciplined to be fit’. She starts her day earlier than most of us, every morning she is up at 3 am and from there onwards the workouts begin. She is a great role model to seniors who want to keep active and fit.

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Image source Yuichiro Miura

Yuichiro Miura became the oldest person to climb Mount Everest in 2013. He first climbed Mount Everest in 2003, at age 70 making him the oldest person to reach the summit of Mount Everest. In 2008 the record was broken. However in 2013, at age 80 he once again climbed Mount Everest making him the oldest person to climb Mount Everest.

Breaking Barriers is an amazing campaign that I urge you all to check out. There are lots of ideas, links to local groups and courses that people can attend, information and statistics for illnesses, how to improve fitness ideas, behind the scenes video footage from the #BREAKINGBARRIERS filming shoot.

Age is NOT a Barrier!!

One Simple Change

One Simple Change

Since Xavier was about 4 months old he has suffered terribly with constipation! He would scream as a baby and obviously then couldn’t tell me what the problem was. We had numerous trips to the doctors and was initially prescribed lactulose. This did absolutely nothing for him! Then as he got bigger and still back and forth to the docs we were advised to up the dose of lactulose. Nothing! Then as he became a toddler we were told to try a sachet of movicol a day in a drink…. this had no affect whatsoever either and we kept going back…. until we were told to give him about 8 sachets a day. Guess what…. even that didn’t work. We were just fobbed off.

As he got older and he got his diagnosis of Autism I researched a little further and constipation and or toileting issues seemed to be quite a common thing in autistic children. So we were at one point referred to the continence nurse at the hospital. I found this hugely unhelpful. We were told to put pictures of Power Rangers on the toilet walls and get him to sit on there 5 minutes each day even if he didn’t need to go and he had to practice a “Poo Face”. Yes…. really!!!

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Xavier’s issue wasn’t that he was scared to go into the toilet. Where he had suffered for so long with these issues, he knew that every time he did actually go…. it would really bloody hurt him so he would hold it in! Longest he ever went without going for a number 2 was 12 days!!! Most often though he would go once a week. I knew when he needed to go as he would be sitting curled up somewhere shaking, he had tummy ache, he would be grumpy and would try as hard as he could to hold on to his toilet.

When it was finally time to let go it truly was a horrific experience for everyone. He would scream the house down, he would shake, he would cry real tears, he was in so much pain, it was heart breaking that there was nothing i could do except encourage and comfort him to let it go. I often cried with him. So so horrible to watch him have to go through that.

This has carried right on through until recently. He is 10 now. I was introduced to Juice Plus products. I wanted to feel healthier myself and was then made aware that if I ordered fruit and veg capsules for myself I would get a years worth of the chewable version for the kids FREE! What did I have to lose? The products contain nothing but natural and healthy ingredients. They contain 27 different fruit and vegetables. Who would be able to eat and afford to do that every day with actual fruits and veggies?

Since I started on my capsules I have so much more energy and am not having “nanna naps” during the day anymore. My Psoriasis id clearing up, my skin is softer, my hair is growing rapidly! But hey… this isn’t about me….

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I do actually believe in miracles!! Since the kids have started on the chewables, Izzy has reported back to me that she feels she is able to concentrate more in school!! Awesome!

But best of all!!!…..Xavier is now able to go to the toilet with NO PAIN and he is now going 2-3 times a week!! I am just in awe of these products! How amazing is that?! I just wish I had discovered them sooner after seeing him suffer for all those years!!

I am so passionate about these products because they DO ACTUALLY WORK! They are incredible! I am now a distributor because I want to help others in the ways they’ve helped me and my children!!

If you would like anymore information please do not hesitate to drop me an email and I will be happy to answer any questions!

luciecreates@live.co.uk

Inclusion in Mainstream

Inclusion in Mainstream

This is one of those things where it either works really well or it doesn’t at all. I think there are lots of factors involved. Whether the school has the ability to facilitate children with additional needs…. If they have the staff…. if the staff are trained….what level of need the child has.

I could go on and on. I know it does work for lots of children, they are able to cope with surroundings and routine that a mainstream setting would carry out. I have friends with children on the Autism Spectrum and who have various other needs who cope and thrive fantastically in Mainstream school. As most of you will know, my son Xavier was in 2 mainstream schools and it really didn’t work out for him. Not at all. He couldn’t cope with so many factors: the amount of children in a class and the noise volume that would bring. He couldn’t cope with eating in the hall at lunchtime with everyone else because of the noise and because of the smell. The teasing and tormenting from other children was a huge factor for Xavier too. He had 5 different helpers throughout a week which didn’t work as continuity is key for Autistics. The staff, as lovely as they were, were not trained to deal with children with SEN. He was not learning, he was not happy, he was just existing in a setting and hated it!xavb+w

The thing to consider too is that its so difficult to get your child into a Special Needs setting as there is so many children needing places and not enough schools. My local one is like 3 miles away and was full to the brim with a massive waiting list. As it was anyway they didn’t think they would be able to meet Xaviers needs. So I had to fight for a place for him in a school that is 14 miles away!! So he travels 28 miles each day to go to school, but do you know what? Every single one of those miles is worth it. He has been in his Special Needs school for almost a year now and it has truly changed his life. He is learning, thriving, has made friends, his confidence has grown, he is participating in activities I never thought he would, he is learning to swim, he is actually going away for 2 nights on a residential trip next month with school!!! He is getting recognition for amazing work too!! He’s had a few Head Teacher Awards now!He took part in the school Christmas performance which he has never done before!  He was a narrator!! He reckons next year he is going for the lead role!! Just WOW!

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Theres been lots of research done and a survey by Simpson Millar about inclusion. It is so important for children to get the best education they can and if this means kids with additional needs can be included and accepted into a Mainstream school then that is fantastic!! EVERYONE is entitled to an education no matter what their needs or disabilities are. Inclusion into society as a massive thing too but that is a whole different blog post!!!

What are your views on this? Have you had good or bad experiences?

10th Birthday Wishlist

10th Birthday Wishlist

So now the madness of Christmas is out of the way I have Xaviers 10th birthday to think about in a couple of weeks!! He was thoroughly spoilt at christmas as was his sister. They have loads of new things so what do I buy him?? Pennies are tight too so I have been looking on the website for The Works as I know Xavier LOVES that shop!! Here are a few things that I know will go down well!!

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A Dr Who DVD Board game!! He loves all things Dr Who! Although I fear he is the only one who would know the answers to the questions!! At £10 its very reasonable too!

Xavier has been talking about wanting to learn the guitar too. His sister has one but its pink so he isn’t too keen on using hers haha! The Works has one for £20 which includes a plectrum, spare string and a carry bag. That is amazing value! I think this one could very well be a definite buy!

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One of his newest obsessions is Super Cars. He loves them. He has quite a few books on them now. On his (quite long) journey to and from school he is always looking out for them and knows what most of them are!! For Christmas he got a boxed model Lambourgini and was really chuffed with it. He says he wants to start collecting them. Ive seen this which is actually a Radio Controlled version, so one he can play with. Great price too at £15 rather than £25!

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So really awesome things on here. Books are always an amazing present for Xavier! He is a huge book worm! So although I thought I was stuck for ideas, there is lots out there that would make his day! With an added bonus of them being great prices too so not going to break the bank after the expense of Christmas!

Any other ideas for a 10 year old boy?

New Year…. New Decor?

New Year…. New Decor?

Now the new year is here and the Christmas decs are packed away and the spring cleaning has commenced, I feel I want to do some decorating in here! We got a new kitchen back in July/August so that is about the only room in the house I am happy with.

Does anyone else feel like this?

We have been in this house almost 10 years and its never been really decorated to how I want it.

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I dream of a clutter free house with beautiful accessories! A gorgeous dining table to sit at at meal times and discuss how the kids days at school went.

We had wooden flooring put in the whole of the bottom floor of the house when we moved in but it is starting to show signs of wear. I would love some luxury flooring which would either be wooden flooring again but maybe a darker colour, we have Oak at the moment, or some some lovely thick carpet. I have so many wonderful ideas in my head! Where to start??!

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My bedroom hasn’t been touched since we moved in. It has horrid lilac walls and we made the mistake or having cream carpet which follows into the hallway and down the stairs! Now we have 3 black cats…. 2 of which are long haired!! ARGH! Not a good combination! I think I’d rather get the rest of the house sorted though, my bedroom isn’t a priority!

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Ive seen thousands of accessories and bit and bobs that would look amazing in my home but I need to decide on themes and colours first. So much to think about. So many ideas, I think I need to head over to pinterest and work out how to use it properly!!

Do you have any projects for the new year?

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